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This study revealed experiences of poor care among young people with sickle cell disorder outside specialist services, with young people's voices being often ignored.

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Alicia Renedo 1, Sam Miles 1, Subarna Chakravorty 2, Andrea Leigh 3, John O Warner 4,5, Cicely Marston 1,*

1 Department of Public Health, Environments and Society, Faculty of Public Health and Policy, London School of Hygiene & Tropical Medicine, London, UK
2 Department of Paediatric Haematology, King’s College Hospital, London, UK
3 University College London NHS Hospitals Foundation Trust, London, UK
4 National Heart and Lung Institute, Imperial College London, London, UK
5 Collaboration for Leadership in Applied Health Research and Care for Northwest London, Imperial College London, London, UK
* Corresponding author Email: Cicely.Marston@lshtm.ac.uk

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