Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a longitudinal qualitative study

Renedo, Alicia; Miles, Sam; Chakravorty, Subarna; Leigh, Andrea; Warner, John O; Marston, Cicely

doi:10.3310/hsdr08440

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This study revealed experiences of poor care among young people with sickle cell disorder outside specialist services, with young people's voices being often ignored.

Alicia Renedo , Sam Miles , Subarna Chakravorty , Andrea Leigh , John O Warner & Cicely Marston .

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Detailed Author information

Alicia Renedo ¹, Sam Miles ¹, Subarna Chakravorty ², Andrea Leigh ³, John O Warner ^4,⁵, Cicely Marston ^1,^*

¹ Department of Public Health, Environments and Society, Faculty of Public Health and Policy, London School of Hygiene & Tropical Medicine, London, UK
² Department of Paediatric Haematology, King’s College Hospital, London, UK
³ University College London NHS Hospitals Foundation Trust, London, UK
⁴ National Heart and Lung Institute, Imperial College London, London, UK
⁵ Collaboration for Leadership in Applied Health Research and Care for Northwest London, Imperial College London, London, UK
^* Corresponding author Email: Cicely.Marston@lshtm.ac.uk

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