Understanding the health-care experiences of people with sickle cell disorder transitioning from paediatric to adult services: This Sickle Cell Life, a longitudinal qualitative study

Renedo, Alicia; Miles, Sam; Chakravorty, Subarna; Leigh, Andrea; Warner, John O; Marston, Cicely

doi:10.3310/hsdr08440

An error occurred retrieving content to display, please try again.

Page not found (404)

Sorry - the page you requested could not be found.

Please choose a page from the navigation or try a website search above to find the information you need.

Toolkit

View Project

This study revealed experiences of poor care among young people with sickle cell disorder outside specialist services, with young people's voices being often ignored.

Alicia Renedo, Sam Miles, Subarna Chakravorty, Andrea Leigh, John O Warner & Cicely Marston.

Detailed Author information
Detailed Author information

Alicia Renedo ¹, Sam Miles ¹, Subarna Chakravorty ², Andrea Leigh ³, John O Warner ^4,⁵, Cicely Marston ^1,^*

¹ Department of Public Health, Environments and Society, Faculty of Public Health and Policy, London School of Hygiene & Tropical Medicine, London, UK
² Department of Paediatric Haematology, King’s College Hospital, London, UK
³ University College London NHS Hospitals Foundation Trust, London, UK
⁴ National Heart and Lung Institute, Imperial College London, London, UK
⁵ Collaboration for Leadership in Applied Health Research and Care for Northwest London, Imperial College London, London, UK
^* Corresponding author Email: Cicely.Marston@lshtm.ac.uk

Funding: {{metadata.Funding}}

{{metadata.Journal}} Volume: {{metadata.Volume}}, Issue: {{metadata.Issue}}, Published in {{metadata.PublicationDate | date:'MMMM yyyy'}}

https://doi.org/{{metadata.DOI}}

Citation: {{author}}{{ (($index < metadata.AuthorsArray.length-1) && ($index <=6)) ? ', ' : '' }}{{(metadata.AuthorsArray.length <= 6) ? '.' : '' }} {{(metadata.AuthorsArray.length > 6) ? 'et al.' : ''}} . {{metadata.JournalShortName}} {{metadata.PublicationDate | date:'yyyy'}};{{metadata.Volume}}({{metadata.Issue}})

Report Content

Full Report
Abstract
Plain English Summary
Scientific Summary

The full text of this issue is available as a PDF document from the Toolkit section on this page.

Responses to this report

No responses have been published.

If you would like to submit a response to this publication, please do so using the form below:

Comments submitted to the NIHR Journals Library are electronic letters to the editor. They enable our readers to debate issues raised in research reports published in the Journals Library. We aim to post within 2 working days all responses that contribute substantially to the topic investigated, as determined by the Editors.

Your name and affiliations will be published with your comment.

Once published, you will not have the right to remove or edit your response. The Editors may add, remove, or edit comments at their absolute discretion.

Enter response message*

Name (title, first name, last name)*

Occupation / Job title*

Affiliation / Employer*

Email*

Other authors
For example, if you are responding as a team or group. Please ensure you include full names and separate these using commas

Statement of competing interests
We believe that readers should be aware of any competing interests (conflicts of interest).
The International Committee of Medical Journal Editors (ICMJE) define competing interests as including: financial relationships with industry (for example through employment, consultancies, stock, ownership, honoraria, and expert testimony), either directly or through immediate family; personal relationships; academic competition; and intellectual passion.

If yes, please provide details below

Enter response title*

Enter CAPTCHA What is nine minus one?*

By submitting your response, you are stating that you agree to the terms & conditions