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There was discordance between patients and clinicians on information requirements around implantable cardioverter defibrillators, and there were no agreed points across the care pathway to discuss deactivation.

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Holly Standing, Catherine Exley, Darren Flynn, Julian Hughes, Kerry Joyce, Trudie Lobban, Stephen Lord, Daniel Matlock, Janet M McComb, Paul Paes & Richard G Thomson.

Holly Standing 1, Catherine Exley 1, Darren Flynn 1, Julian Hughes 2, Kerry Joyce 1, Trudie Lobban 3, Stephen Lord 4, Daniel Matlock 5, Janet M McComb 4, Paul Paes 6, Richard G Thomson 1,*

1 Institute of Health and Society, Newcastle University, Newcastle upon Tyne, UK
2 Policy, Ethics and Life Sciences Research Centre, Newcastle University, Newcastle upon Tyne, UK
3 Arrhythmia Alliance: The Heart Rhythm Charity, Stratford-upon-Avon, UK
4 Newcastle upon Tyne Hospitals NHS Foundation Trust, Newcastle upon Tyne, UK
5 Department of Medicine, University of Colorado School of Medicine, Aurora, CO, USA
6 Northumbria Healthcare NHS Foundation Trust, North Shields, UK
* Corresponding author Email:

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