Supporting good quality, community-based end-of-life care for people living with dementia: the SEED research programme including feasibility RCT

Robinson, Louise; Poole, Marie; McLellan, Emma; Lee, Richard; Amador, Sarah; Bhattarai, Nawaraj; Bryant, Andrew; Coe, Dorothy; Corbett, Anne; Exley, Catherine; Goodman, Claire; Gotts, Zoe; Harrison-Dening, Karen; Hill, Sarah; Howel, Denise; Hrisos, Susan; Hughes, Julian; Kernohan, Ashleigh; Macdonald, Alastair; Mason, Helen; Massey, Christopher; Neves, Sandra; Paes, Paul; Rennie, Katherine; Rice, Stephen; Robinson, Tomos; Sampson, Elizabeth; Tucker, Susan; Tzelis, Dimitrios; Vale, Luke; Bamford, Claire

doi:10.3310/pgfar08080

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This research programme showed that the intervention developed was acceptable, feasible and highly valued by all stakeholders, but is unlikely to reduce costs and will not progress to a full trial.

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Louise Robinson ^1,^*, Marie Poole ¹, Emma McLellan ¹, Richard Lee ², Sarah Amador ³, Nawaraj Bhattarai ¹, Andrew Bryant ¹, Dorothy Coe ⁴, Anne Corbett ⁵, Catherine Exley ¹, Claire Goodman ⁶, Zoe Gotts ⁷, Karen Harrison-Dening ⁸, Sarah Hill ¹, Denise Howel ¹, Susan Hrisos ¹, Julian Hughes ⁹, Ashleigh Kernohan ¹, Alastair Macdonald ¹⁰, Helen Mason ¹¹, Christopher Massey ⁷, Sandra Neves ¹⁰, Paul Paes ¹², Katherine Rennie ¹³, Stephen Rice ¹, Tomos Robinson ¹, Elizabeth Sampson ¹⁴, Susan Tucker ¹⁵, Dimitrios Tzelis ¹, Luke Vale ¹, Claire Bamford ¹

¹ Population Health Sciences Institute, Newcastle University, Newcastle upon Tyne, UK
² Social Work, Education and Community Wellbeing, Northumbria University, Newcastle upon Tyne, UK
³ Division of Psychiatry, University College London, London, UK
⁴ North East and North Cumbria Local Clinical Research Network, Newcastle upon Tyne, UK
⁵ College of Medicine and Health, University of Exeter, Exeter, UK
⁶ School of Health and Social Work, University of Hertfordshire, Hatfield, UK
⁷ Cumbria, Northumberland, Tyne and Wear NHS Foundation Trust, Newcastle upon Tyne, UK
⁸ Dementia UK, London, UK
⁹ Medical School, University of Bristol, Bristol, UK
¹⁰ The Glasgow School of Art, Glasgow, UK
¹¹ Yunus Centre for Social Business and Health, Glasgow Caledonian University, Glasgow, UK
¹² Northumbria Healthcare NHS Foundation Trust, Newcastle upon Tyne, UK
¹³ Faculty of Medical Sciences, Professional Services, Newcastle University, Newcastle upon Tyne, UK
¹⁴ Marie Curie Palliative Care Research Department, University College London, London, UK
¹⁵ Patient and Public Involvement Representative, ,
^* Corresponding author Email: a.l.robinson@newcastle.ac.uk

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{{metadata.Journal}} Volume: {{metadata.Volume}}, Issue: {{metadata.Issue}}, Published in {{metadata.PublicationDate | date:'MMMM yyyy'}}

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