Journals Library


EME - 12/205/56

Treatment of Barth Syndrome by CARDIOlipin MANipulation (CARDIOMAN): A randomised placebo-controlled pilot trial conducted by the nationally commissioned Barth Syndrome Service

Project title: Treatment of Barth Syndrome by CARDIOlipin MANipulation (CARDIOMAN): A randomised placebo-controlled pilot trial conducted by the nationally commissioned Barth Syndrome Service

Call to action: 12/205 12/205 Very Rare Diseases

Research type: Primary Research

Chief investigator: Dr Guido Pieles

Contractor: University Hospitals Bristol NHS Foundation Trust

Cost: £528,070.00

Co-investigators: Dr Beverly Tsai-goodman, Dr Chiara Bucciarelli-Ducci, Dr Eileen SuttonORCID logo, Dr Matthew Toth, Dr Paul Verkade, Dr Rosemary GreenwoodORCID logo, Dr Vanessa Garratt, Mrs Michaela Damin, Mrs Nicol Clayton, Ms Ann Bowron, Ms Laura Birch, Professor Andrew Ness, Professor Barnaby ReevesORCID logo, Professor Colin StewardORCID logo, Professor Julian Hamilton-Shield, Professor Simon Heales.

Started: April 2015 | Status: Research in progress

ISRCTN: 58006579

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