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This research programme examined how and why patients seek other patients' experiences online, informed new guidelines for developing patient experience websites, and explored the challenges of evaluating websites in trials.

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Sue Ziebland 1,*, John Powell 1, Pamela Briggs 2, Crispin Jenkinson 3, Sally Wyke 4, Elizabeth Sillence 2, Peter Harris 5, Rafael Perera 1, Fadhila Mazanderani 6, Angela Martin 1, Louise Locock 1, Laura Kelly 3, Margaret Booth 7, Bob Gann 8, Nicola Newhouse 1, Andrew Farmer 1

1 Nuffield Department of Primary Care Health Sciences, University of Oxford, Oxford, UK
2 Department of Psychology, Northumbria University, Newcastle upon Tyne, UK
3 Nuffield Department of Population Health, University of Oxford, Oxford, UK
4 Institute of Health and Wellbeing, University of Glasgow, Glasgow, UK
5 School of Psychology, University of Sussex, Brighton, UK
6 School of Social and Political Science, University of Edinburgh, Edinburgh, UK
7 Lay Representative, Oxford, UK
8 Widening Digital Participation, NHS England, London, UK
* Corresponding author Email:

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