Journals Library

Reporting PPI

Reporting public and patient involvement

The NIHR promotes the involvement of patients and the public in all stages of research. The NIHR Journals Library aims to set a standard for the reporting of this involvement, in keeping with its role of providing a comprehensive archive of funded research. All reports should therefore explain how patients and the public have been involved in the study outside of being study participants/research subjects. 

Authors should report faithfully on PPI activity even if only to  acknowledge the absence of it within the study. You may do this by describing PPI throughout your report or in its own separate section.

In developing your reporting on PPI, please think about the following:

  • If there was no patient and public involvement (PPI) in the study, please state this in your report setting
    out why this was not thought appropriate or was not feasible
  • What form did the PPI take and at what stages did it occur during your study?
  • What impact did PPI have during the study? How was it useful?
  • If there was little/no impact of PPI during the study, please say so
  • The way(s) PPI will support dissemination of the results

When reporting public involvement in any study, you may wish to refer to the GRIPP2 Short Form (below) for guidance on what to include on and in which sections of your report this should appear.

GRIPP2 Short Form

Section and topic Item Reported on page No
1: Aim Report the aim of PPI in the study  
2: Methods Provide a clear description of the methods used for PPI in the study  
3: Study results Outcomes - Report the results of PPI in the study, including both positive and negative outcomes  
4: Discussion and conclusions Outcomes - Comment on the extent to which PPI influenced the study overall. Describe positive and negative effects  
5: Reflections/critical perspective Comment critically on PPI input in the study, reflecting on the things that went well and those that did not, so others can learn from this experience  
For studies which are mainly about public involvement in research, you may wish to refer to the GRIPP2 Long Form
 
You may find it useful to look at some of the following published journal issues for examples of good reporting on patient and public involvement:
  • Issue 2:48 of Health Services and Delivery Research
  • Issue 2:04 of Health Services and Delivery Research
  • Issue 3:01 of Programme Grants for Applied Research
  • Issue 5:04 of Public Health Research
  • Issue 21:35 of Health Technology Assessment