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(This will be a mandatory section, to be included as a separate heading as part of the “Discussion” of your report, for submissions from 1st April 2022. We will accept the inclusion of this section prior to this point as it is important to us to give you an opportunity to discuss issues related to this in your project for the benefit of the research community.)
The NIHR is committed to ensuring Equality, Diversity and Inclusion in terms of the people who lead the NIHR, the people who sit on our funding committees and provide peer review, and the people who lead, deliver and are involved in our research. Embedding equality, diversity, and inclusion across NIHR's research, systems and culture is a strategic focus of our Best Research for Best Health strategy. As part of this, the NIHR Journals Library wants to ensure all reports include an “Equality, Diversity and Inclusion” section explaining how this has been considered during the project.
We are also keen to ensure that our reports are accessible and inclusive, therefore before writing your report please read our guide on creating inclusive content and language.
Equality, Diversity and Inclusion is a broad topic and we will continually review and update this guidance, however we want to highlight the following areas to focus on when writing your report:
- Participant Representation:
- Reflect on the important population characteristics for your study. What active steps were taken to optimise participation of relevant people?
- Was the participant population inclusive? If not, an explanation should be provided as to what prevented this or any improvements that could be made for future study designs.
- If applicable, provide comments on how gaps in prior evidence/data were identified and how were these addressed during the project. Did this research uncover any gaps in knowledge/data during the project; how could this be addressed in future research?
- How have you made sure text and pictures, used as part of participant and public engagement, were inclusive and accessible and not discouraging to under-represented groups?
- Reflections on your research team and wider involvement:
- Does your research team include those from groups who are generally under-represented in your field of study? If not, please state why this is the case.
- Was there a range of experience and expertise across the research team? How were development opportunities provided, particularly for more junior members of the team?
- Were participants and members of the public involved representative of the disease and geographic areas? What role/s did they provide and how did they benefit the project?
To aid with the writing of this section please utilise the following frameworks that the NIHR has developed to help our studies be more inclusive. There are also a multitude of resources on these sites for you and your trial team’s own development around Equality, Diversity and Inclusion.
The INCLUDE Framework – Provides a roadmap showing when it might be possible to include under-served groups during the course of research
The INCLUDE ETHNICITY Framework - Aims to help study teams think carefully about which ethnic groups should be included in their study for its results to be widely applicable, and what challenges there may be to making this possible.