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Families and clinicians prioritised overlapping but different morbidities, but extracorporeal life support and multiple morbidities are particularly important adverse outcomes.

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Katherine L Brown 1,*, Christina Pagel 2, Deborah Ridout 3, Jo Wray 1, Victor T Tsang 1, David Anderson 4, Victoria Banks 1, David J Barron 5, Jane Cassidy 5, Linda Chigaru 1, Peter Davis 6, Rodney Franklin 7, Luca Grieco 2, Aparna Hoskote 1, Emma Hudson 8, Alison Jones 5, Suzan Kakat 1, Rhian Lakhani 4, Monica Lakhanpaul 3,9, Andrew McLean 10, Steve Morris 8, Veena Rajagopal 1, Warren Rodrigues 10, Karen Sheehan 6, Serban Stoica 6, Shane Tibby 4, Martin Utley 2, Thomas Witter 4

1 Heart and Lung Division, Great Ormond Street Hospital NHS Foundation Trust, London, UK
2 Clinical Operational Research Unit, University College London, London, UK
3 Population, Policy and Practice Programme, UCL Great Ormond Street Institute of Child Health, London, UK
4 Departments of Paediatric Intensive Care, Cardiology and Cardiac Surgery, Evelina London Children’s Hospital, London, UK
5 Departments of Intensive Care and Paediatric Cardiac Surgery, Birmingham Children’s Hospital, Birmingham, UK
6 Departments of Intensive Care and Paediatric Cardiac Surgery, Bristol Royal Hospital for Children, Bristol, UK
7 Paediatric Cardiology Department, Royal Brompton and Harefield NHS Foundation Trust, London, UK
8 Department of Applied Health Research, University College London, London, UK
9 Community Child Health, UCL Great Ormond Street Institute of Child Health, London, UK
10 Department of Intensive care, Royal Hospital for Children, Glasgow, UK
* Corresponding author Email: Katherine.brown@gosh.nhs.uk

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